Advisory panel - parenteral nutrition

06/04/2021

We are seeking volunteers to be part of a PINNT advisory panel for people on parenteral nutrition

PINNT often instigates or participates in projects that would benefit from input from people with personal experience. We wish to establish a ‘go-to-team’ who can respond within a deadline that will be set for each project. All communication will be via email; a virtual meeting will be scheduled if the need arises. We are seeking a wide range of experiences - those new to artificial nutrition, well-established patients and key people who support those on it. Each panel will be no larger than 15 members, so spaces are limited! PINNT understands that not everyone will be able to respond to each project. If PINNT requires a wider comment this will be sought separately.

We are seeking people who: Receive parenteral nutrition - care/support a loved one on parenteral nutrition - are a parent/guardian of someone on parenteral nutrition.

We wish to establish a ‘go-to-team’ who can respond within a deadline that will be set for each project. All communication will be via email; a virtual meeting will be scheduled if the need arises. We are seeking a wide range of experiences - those new to artificial nutrition, well-established patients and key people who support those on it. Each panel will be no larger than 15 members, so spaces are limited! PINNT understands that not everyone will be able to respond to each project. If PINNT requires a wider comment this will be sought separately.

How often will you be asked to contribute? This will vary, there are at least two projects coming up in the next three to six months for each kind of treatment.If you are interested in supporting PINNT and your fellow members by using your personal knowledge, then we want to hear from you! Please note that you must be committed to checking and responding to emails regularly.

Qualification required: someone keen to volunteer to help PINNT with key projects over the coming twelve months. Regular email user.
Duration of appointment: Ideally, PINNT would like to appoint panel members for a period of twelve months, however, if for any reason, a panel member needs to withdraw this will be respected.

All the projects reviewed by our advisory panels will be deemed confidential until the projects or resources are made available or announced by PINNT.

What to do next: Please email us on comms@pinnt.com and state the following:

Which type of artificial nutrition you have.
How long you have been on it and why.
If a partner/carer or parent/guardian – please state which.
If a partner/carer or parent/guardian – please state how long the person has been feeding.

Please reply by Monday 26^th April 2021.

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