About Us

Sarah Green
My son, Daniel, was born in September 1996 with long gap Oesophageal Atresia. He had a gastrostomy put in immediately and then 2 months later he had a gastric transposition (his stomach was moved into his chest to join his stomach to his oesophagus) and then he had a jejunostomy tube put in. Soon after I joined PINNT a request was put in Online for volunteers and I asked what help was needed and became the Membership Secretary and joined the Executive Committee.

I have 3 other children and have to fit my PINNT work around my busy life. I run a Beaver Colony and my partner, Kelvin and I also run a Cub Pack.

Keith Nurcombe
My responsibility in PINNT is around helping the charity to work with commercial organisations and the NHS and deliver better patient outcomes for PINNT members.

I have worked with PINNT for over ten years now and this is my second stint on the EC. Last time I worked in a number of roles including treasurer.

For my day job I work for O2 building and running a business called O2 Health. This business delivers solutions that help patients live their lives more flexibly using mobile and associated technologies to help them.

I am divorced and have three children who keep my very busy when I am not at work. I enjoy cinema, skiing and sailing as a hobbies when I have the time.

Richard Shawyer
I have been a member of PINNT since 2006/2007. This was when I was put on PN following a difficult set of teenage years. I was diagnosed with Crohn's when I was 10 but escaped major surgery until I was 16. This was mainly with enteral feeds such as Elemental 028 and Ensure. Since then I have had to have a lot of surgery and now have a short bowel so am feed with PN; which for me has made me extremely well. To this day I still hold down a job and I am the only commercial pilot in Europe to be feed in this way.

My personal aims with PINNT are to build on the membership, both PN and enteral so that the 'patient' has a stronger voice should the government look to change anything. I am also proud to be associated with a charity that has made so many differences to patients life; PINNT is responsible for bring portable pumps to the UK, designing of certain rucksacks and drip stands amongst others. I look forward to working with the Officers and my fellow trustees to help better the care that patients receive and inform patients.


Carolyn Wheatley
Due to Pseudo Obstruction I am fed intravenously (HPN). Prior to starting feeding I experienced the roller coaster ride of being misdiagnosed, misunderstood and feeling very isolated. Things have changed and improved!

Being associated with the founder members of PINNT I feel privileged to have been involved since PINNT's inception and continued growth. There was a shared passion to bring together artificially fed people into a forum where experiences, fear and ideas could be shared. We have achieved so much - worked to bring new equipment and services to those on home artificial nutrition.

When I can I enjoy travelling, shopping as well as all the normal things that make us happy!